Gannon Greeks Donate $2,500

Tuesday Apr 5th, 2016

We had the pleasure of working with the Greek organizations of Gannon University this past semester. All the organizations came together to work on their first ever Gannon Greek Ball. Tonight they presented us with a check for $2,500!!! 

Articles of Interest: CBD Oil

Monday Apr 4th, 2016

There has been a lot of talk regarding the use of medical marijuana or CBD oil, for use in treatment in epilepsy in the news lately. I just wanted to share a few articles of interest on the topic.

Giving Tuesday

Tuesday Dec 1st, 2015

Today marks a global day of giving, and we would be honored if you would consider donating to the AJO Forever Foundation. Donations can be made via paypal, all donations are tax deductible.

A Few Books That Have Gotten Us Through Our Grief

Friday Aug 28th, 2015

Nothing about losing a child is easy. Nothing. But in the days, months, and years (*sigh* we are coming up on the 2nd anniversary of losing Alyssa) I needed to know SOMEONE out there knew what I was feeling. The pain is unlike anything you could ever imagine.

Video Coverage of the Poker Run and Festival

Monday Jul 27th, 2015

Here is the news coverage (click the link below to view) from the #AJO Poker Run and Festival.

The Second Annual #AJO Pay it Forward Festival and Poker Ride for Epilepsy Awareness

Sunday Jul 26th, 2015

This year we chose to celebrate what would have been Alyssa’s 20th birthday in a big, fun, family friendly way. We decided alongside the Poker Run we would hold an all day, family fun day! 

National Epilepsy Walk, Washington DC

Wednesday Apr 15th, 2015

Alyssa’s name at the National Epilepsy Walk, on the remembrance wall. There are way too many names on that wall. We need a cure! Not another life should be lost to epilepsy!

The Past 18 Months

Friday Apr 3rd, 2015

The last 18 months have been a whirlwind. I knew 2 things for sure after Alyssa’s passing; I was NOT going to let her be forgotten, and that I was going to make her proud. In this last year and a half, we have been able to do some pretty amazing things. And in my heart of hearts, I know this is only the beginning. Some of my happiest times since then have come from giving.

SAMi the Sleep Activity Monitor

Friday Apr 3rd, 2015

The AJO FOREVER FOUNDATION will begin taking applications shortly for reduced cost, or free SAMi monitors based on financial need and urgency. If you think this is something you, a family member, child, or friend could benefit from, please e-mail us at and we will send you an application...

80s 4 AJO Dance

Thursday Feb 19th, 2015

The 80’s Experience for the #AJO Foundation brought to you by Millennium Sound is sure to be our biggest and best fundraiser to date!

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