Seizures. Epilepsy. They are part of my life, but they do not control my life. Unfortunately- they are completely unpredictable. When I wake up to a morning full of seizures, all I can ... Likes
AJO Forever in our HeartsAnd one year later, he's a Pittsburgh Steeler! If I were cancer I'd run from him too! I'm so excited that James is CANCER FREE!!! #connerstrong AJO Forever in our Hearts shared their photo. CommentsAJO Forever in our Hearts In honor of James Conner we will be making a donation in his name, please join us!
Things To Never Do When Someone Tells You They Have EpilepsyOur friend Tiffany at The Epilepsy Network (TEN) writes a great article about things to say (and not say) when speaking with someone with epilepsy. I remember the very first time that someone spoke the words, "Everything will be okay!" ... Likes
Photos from AJO Forever in our Hearts's postI know I didn't do all the right things, but she made me try my very best. My heart goes out to all of the mothers that are missing a piece of their hearts today. Happy Mother's Day πΊ AJO ... CommentsDotti Norum We lost a beloved son and grandson to epilepsy 3 yes ago. We know your heartache and you know ours. ...Margaret McIntyre I can't even imagine. You are an inspiration. Happy Mothers DayDotti Norum Mty hugh mistake... It has been 4yrs not 3. At 81, I lose time. Search Keith Brandt to see his ... Likes
"We wish she could've been in these pictures with us! She has been in our hearts the past 4 years and I know she's helped us along the way π couldn't leave without paying her a ... CommentsTerry Parsons I love you all...πππAmy Martin Gusek They never forget her πChris Spaeder Proper π ajo forever in our hearts Likes
Timeline PhotosHard to believe this was 4 years ago, and that 4 months later, she'd be gone. CommentsGreg Spanos Beautiful girl, great dress, awesome smile and it looks like she was having a wonderful evening ... life is extraordinarily ...Debi Tarasovich It will always feel like yesterday π¦ her legacy will live on. #AJO.Patty Myers The pain will always be there, but so will her joy for life...God bless you all! Likes
Photos from AJO Forever in our Hearts's postWe are so happy and excited for our friend James Conner, as he was selected in the NFL Draft last night by the Pittsburgh Steelers! Not only is he so deserving of this, but he's going to make the league, ... CommentsAJO Forever in our HeartsBill Timon Well deserved he is the type of man the NFL needs to promote not only for the struggles he went ...Kelly Swanson Case I am so excited for James!!! My daughter worked on the field for athletic training her a Freshman year at ... Likes
A few years ago a bright eyed, beautiful, smart girl that I had known since birth starting working for me. I was blessed with her assistance, with her amazing aura and thoughtfulness, just as everyone ... CommentsAnne Schofield Even those of us that weren't fortunate to know her have felt her auraLisa Cicero God bless her ππDebbie Hosler Hugs Likes
Due to the overwhelming response to our post about the embrace monitors, please give us a day or 2 to go through them all. Please also keep in mind that we try to help as many as we can, and ... CommentsTabitha Smith Any chance you guys still have these?? We are at the hospital with one of our two daughters that has ...Robin Eicher How much do these monitors cost you? Likes
Timeline PhotosWe still have 3 (2 black and 1 pink) of the Empatica Embrace seizure alert monitors. If you think this is something that you, or someone you know could use, please get in touch with us. CommentsKelly Seblink Does insurance ever cover the cost of these? Probably not I'm assuming. I'd love more information. My daughter Kaitlin has ...Tricia Heis Collins My son really needs one. He has severe intractable epilepsy and went into cardiac arrest from a seizure this year. ...Patty Morey Caffro Roxanne Patten daughter loghann has several seizures a day. Roxanne doesn't ask for help but this would help her and ... Likes
SupernovaSweet Nova π Today.... my eyes just well up with tears. We have this alert, aware little toddler... I have never seen anything like it. Never before have I seen Nova doing so well. The screen of the iPad is ... Likes
I'm sure Alyssa (sissy) is celebrating her brothers 8th birthday today! Jace and Alyssa shared the sweetest bond. She LOVED her baby brother so very much. I hope he will hold onto the few memories he has of her for ... 1 comments 186 likes
Seizures. Epilepsy. They are part of my life, but they do not control my life. Unfortunately- they are completely unpredictable.
When I wake up to a morning full of seizures, all I can ... Likes
If I were cancer I'd run from him too! I'm so excited that James is CANCER FREE!!! #connerstrong
AJO Forever in our Hearts shared their photo. Comments
https://shop.stjude.org/GiftCatalog/donation.do?cID=14262&pID=24671
I remember the very first time that someone spoke the words, "Everything will be okay!" ... Likes
AJO ... Comments
"We wish she could've been in these pictures with us! She has been in our hearts the past 4 years and I know she's helped us along the way π couldn't leave without paying her a ... Comments
A few years ago a bright eyed, beautiful, smart girl that I had known since birth starting working for me. I was blessed with her assistance, with her amazing aura and thoughtfulness, just as everyone ... Comments
Little Sal Cicalese isnβt just your typical 5-year-old. ... Likes
Today.... my eyes just well up with tears. We have this alert, aware little toddler... I have never seen anything like it.
Never before have I seen Nova doing so well.
The screen of the iPad is ... Likes
Who is that cute baby.
https://t.co/IuW0JIf5n8 1 1
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